Saturday, November 22, 2008

Hey wait, I do have a forum...

I know that this blog is largely ridiculous, but I thought I would try to make some effort tonight to do some very small good with it.

If you're feeling charitable at the moment or looking for a Christmas goodwill project, I would like to advocate for Mac Kids and the Canadian MPS Society.

MPS (Musopolysaccharidos) is an inherited, degenerative disorder caused by enzyme deficiencies. Affected individuals lack the necissary enzymes for normal cell degradation and recycling, substances store throughout their bodies, causing progressive damage to their hearts, bones, joints, respiratory systems and central nervous systems.

From the Canadian MPS Society:

"An MPS baby appears normal at birth and seems to develop normally for about the first year or more depending on which MPS type the child is affected with. The first signs can vary and are evident at different ages in affected children. Symptoms that usually prompt medical attention are ear infections, runny noses and colds.

The mucopolysaccharide storage disorders are progressive and vary widely in severity. All MPS children tend to have coarse facial features. All of them have, in some degree, skeletal involvement. In most children this involves joint changes with limitation of movement. In all of the MPS disorders, multiple organs are involved. Several children have clouding of the cornea which leads to vision impairment. Enlargement of the liver and spleen and involvement of the heart and blood vessels are frequent symptoms.

Progressive mental retardation is present in some children, as well as umbilical and groin hernias, stunted growth, fluid on the brain, thickened skin, excessive hair growth, chronic runny nose, chronic ear infections causing hearing loss, and a projected life expectancy of ten to twenty years."

For more information:

And of course Mac Kids can always use a hand:


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